I had a PET/CT scan right when I got home to see whether there was growth despite starting AIM, which I suspected, but the scan was equivocal. So, I am back in the hospital for one more cycle of AIM, then we will have a CT scan and see whether to move on or possibly do one more round. The next chemo regimen would be one that is based on the molecular profiling I had done on the little tumor removed from my belly. The oncologist in LA thought it was a good choice, and after some education my gyn/onc here has agreed to implement it, and my insurance company has agreed to cover it, which is great because we officially go off-roading with that treatment. Those drugs are Abraxane (which sounds like a super-hero) and Erbitux (which sounds like something I would prescribe). Anyway we'll see how this AIM does. The surgeons are both prepared to operate (belly first, or belly and chest together, possibly) when I have some stability (hopefully shrinkage and stability).
The AIM is tough. In-patient 5, really 6, days. Drip 24 hours/day. We are doing our best to make it bearable, with visits, and sleeping, and walking, movies and art, etc. The chaplain came by today, and it turns out he is a Buddhist and did a Medicine Buddha meditation/chant for me, which was very special and surprising. I have a beautiful Buddha art from Lenny in here with me.
Keep sending those healing thoughts.
More later. Love, love, Annie
6 comments:
love you, babe. xxxo belle
you are such an amazing Warrior, Annie. I am awed by they way you have taken up the spear and lead the fight on this.
I will write you later about the vision I had of you all when I was having the flu and all kinds of fever last week. I'm late for work right now, but I want you to know - you are loved, and loved and loved.
Sending you lots of Kassie hugs, wet (and sticky) Maeve and Rowan kisses and loads of goofy Dan jokes. We love you, miss you and are keeping you ever present in our thoughts, prayers, and hearts.
-Kas
big hugs.
holding y'all in my heart.
Love you, love you, love you. You're a superhero!
You are amazing. Glad you spent time with "Auntie Margaret". She really should be "Biggie" now since there are 2 other generations of Margarets in the family, but last time I mentioned it, she balked. Maybe you should take on the name "Biggie". It has a solid generational appeal. I don't know if you ever knew the original Biggie that well but she was a favorite of mine - our Grandma K's cousin. By the way, she was a petite thing!
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