Tuesday, February 10, 2009

Quick Update

Annie here.  Went to LA, great to spend so much time with my Mom and my friend Leigh-Anne came down for a bit as well to come to some of the doctors appointments that I had lined up which was lovely. Went to consult with 6 docs (UCLA and Cedars), two oncologists, two abdominal/pelvic surgeons, two thoracic surgeons, all sarcoma specialists.  Good thing too as they all had different things to say, some more hopeful and helpful than others.  Returned home with one of each that can help with my care.  

I had a PET/CT scan right when I got home to see whether there was growth despite starting AIM, which I suspected, but the scan was equivocal.  So, I am back in the hospital for one more cycle of AIM, then we will have a CT scan and see whether to move on or possibly do one more round.  The next chemo regimen would be one that is based on the molecular profiling I had done on the little tumor removed from my belly.  The oncologist in LA thought it was a good choice, and after some education my gyn/onc here has agreed to implement it, and my insurance company has agreed to cover it, which is great because we officially go off-roading with that treatment.  Those drugs are Abraxane (which sounds like a super-hero) and Erbitux (which sounds like something I would prescribe).  Anyway we'll see how this AIM does.  The surgeons are both prepared to operate (belly first, or belly and chest together, possibly) when I have some stability (hopefully shrinkage and stability).

The AIM is tough.  In-patient 5, really 6, days.  Drip 24 hours/day.  We are doing our best to make it bearable, with visits, and sleeping, and walking, movies and art, etc.  The chaplain came by today, and it turns out he is a Buddhist and did a Medicine Buddha meditation/chant for me, which was very special and surprising.  I have a beautiful Buddha art from Lenny in here with me.

Keep sending those healing thoughts.

More later.  Love, love, Annie